Monday, January 31, 2011

Sending Good Thoughts

I haven't slowed down today. The next two weeks I'll be doing interviews and writing stories for the papers in Birmingham.
I'm working on a story that breaks my heart. A young family in town has two children with Fanconi Anemia, which is a rare genetic disease that among other things causes the bone marrow to fail.
The family is desperately trying to get a bone marrow transplant for one their children who's condition is the most advanced.
I've been doing research on the disease in preparation for the interviews and what I'm reading does not sound good.
Jilda and I met these children just before Christmas when we performed at a fundraiser for them. We didn't know the family, but a friend of ours was involved in organizing the benefit and asked if we'd perform.
The little girl who is about four years old, came up to us when we arrived at the benefit and reached up for Jilda to hold her. Jilda picked her up and we talked to her for a long while. We didn't know at the time that she was  one of the children with FA. She was angelic.
I could not be a nurse or doctor in a children's hospital. Well, even if I WAS good in math, anatomy, pharmacology, etc. I still couldn't do that work. It would be too hard. Of course it would be extremely rewarding when you saved a child, but I'm afraid I would be devastated to lose one.
I'm sending positive energy and good thoughts their way.


  1. OH how sad! :-( I'm sending lots of positive vibes and hope that this little girl is given a bone marrow transplant asap! Take care

  2. I learned how special those doctors and nurses are when my granddaughter had cancer. They are angels on earth. Sending good thoughts to them as well.

  3. It breaks my heart when children are sick like that. I hope that they will be able to get the bone marrow transplant.

  4. Oh, I will send some as well. Being any kind of healthcare worker requires a very special heart, I could not do it either.

    BTW, do they still have the big metal man there in Birmingham? :)
    Jules @ Trying To Get Over The Rainbow

  5. Thanks y'all. I'll post a link to the story once it's published but it will run in a new monthly newspaper that doesn't launch until April.
    Jules - Yes vulcan is still standing. I have an entry about Vulcan in the archives. Here's the link:

  6. Aw... praying for the little girl and her family.



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